UNDERSTANDING
EATING DISORDERS
IN ADOLESCENCE

The Study Overview Provided to Participants:

Research Study Overview

The study involves the completion of an online survey that will take approximately 25 minutes to complete, followed by 6 educational videos (approximately 3 hours), and another online survey that will take approximately 10 minutes to complete within a three week period.

Three weeks later, you will be asked to complete another set of questionnaires that will take approximately 20 minutes to complete.

The total time involved in participating in the study is estimated to be 4 hours over 6 weeks.

If you agree to participate in this study, the following will occur:

  1. You will create a secure account on the website: www.canped.ca.
  2. You will be asked to complete 6 questionnaires assessing:
    • Your knowledge about eating disorders
    • Your belief in your ability to help your child recover
    • The impact the eating disorder has on your family
    • What meal times are like at home
    • Demographic information
    • What types of services your child is receiving
  3. You will then be granted access to the 6 Modules, and you will be asked to view them in order, starting with Module #1.
    • You will have access to the Modules for a total of 3 weeks (21 days). After 3 weeks, your access to the website will expire.
  4. You will be asked to complete 3 questionnaires after you have finished viewing the 6 Modules, or after 3 weeks have elapsed, whichever comes first. The questionnaires will assess:
    • Your knowledge about eating disorders
    • Your belief in your ability to help your child recover
    • Your satisfaction with the website and its content
  5. Three (3) weeks later, you will be asked to complete 5 questionnaires assessing the following:
    • Your knowledge about eating disorders
    • Your belief in your ability to help your child recover
    • The impact the eating disorder has on your family
    • What meal times are like at home
    • What types of services your child is receiving

Potential Risks & Discomforts

There are no anticipated risks associated with this study. You will complete all questionnaires and view all modules at a location of your choice, ideally a private area such as at home. A potential discomfort may include an increase in your anxiety due to an increased knowledge of the potential seriousness of the eating disorder.

Possible Benefits

You may or may not benefit from the study. Potential benefits may include increased knowledge about eating disorders, decreased negative impact of the eating disorder on your family, increased confidence in your own ability to help the youth struggling with an eating disorder, and decreased stress during meal times.

Participant Compensation

If you complete all of the required questionnaires and educational material, with your permission, you can enter a maximum of 3 ballots in a random draw to win 1 of 4 available iPad Minis.

Participation and Withdrawal

Your participation in this research is voluntary. Your decision to participate or not in this study will not affect the care you receive at the Children's Hospital of Eastern Ontario (CHEO). You are free to withdraw from the study at any time without penalty.

New Findings

We will inform you of any new information that might influence your decision to participate in this research project.

Privacy and Confidentiality

You will not be identified in any publication or presentation of this study. To protect your identity, any identifying information such as your email address or name, will be stored separately from the questionnaires you complete. No information about you or your child will be disclosed to others without your written permission, unless required by law.

Study Results

We hope to have the results of this study available some time in 2015. If you are interested in obtaining the results, please consult www.canped.ca.

Rights of Research Participants

The CHEO Research Ethics Board (REB) has reviewed and approved this research project. The REB is a committee of the hospital that includes individuals from different backgrounds. The Board reviews all research that takes place at the hospital. Its goal is to ensure the protection of the rights and welfare of people participating in research. The Board's work is not intended to replace a parent or child's judgment about what decisions and choices are best for them.

You may contact the Chair of the Research Ethics Board for information regarding your rights in research studies at 613.737.7600 ext 3272, although this person cannot provide any health-related information about the study. You are not waiving any legal claims, rights, or remedies because of your participation in this research study.

If you have any questions or concerns about this study, please contact our research coordinator at 613.737.7600, extension 3803.

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